Follow up with the cardiologist 2 weeks after surgery

Today we went to the cardiologist and all went well. She got her last stitch out. He is adding alittle formula to the breast milk cause she is losing weight ... She is 23 and a quarter inch long and 9 lbs 11 oz. Other then the weight she is doing good... WHAT A TROOPER!!!!!

Home doing well. In some pain

Bella is home and doing good. she is starting to really eat better so i dont think we ll need the nose tube anymore . :) she been sweating alot and seems to be fussy cause of pain but still smileing all the time.. SO DARN CUTE!!!! I love her so much.....

scare this morning.... BYE BYE ANN ARBOR / HELLO WAUSEON she nursed and got tubes and ivs out today

So it looks like we are going to be coming home tomorrow :) She is off all her ivs, tubes ,etc. She has a feeding tube in the nose that she will be coming home with for a few days.. I wish we could bring this monitor home with us hehe, It tells her oxygen and heart rate at all times. She nursed today once and did really good so hopefully she keeps it up and we can get that nose tube out. This morning some may have seen the facebook asking for prayers cause they thought she'd have to go back in to surgery. They did a echo this morning and saw that she is getting to much flow to her lungs. So they were going to open her back up and close some of that off. But after our surgerion talked to our cardiologist they decided that she would be ok till her next surgery and they figured that would happen in Oct. So just because we are coming home tomorrow. Now this dont mean you can stop praying :) cause the next one will be here before we know it. The shunt should last till she is 6-8 months old so that means jan or feb but they have to do it before the winter months cause they dont want to take chances of her getting sick. Well Wauseon we will hopefully see you all tomorrow! :) :) :) Oh yea did I tell you All I HELD HER ALL DAY AND NIGHT HEHEHEHEHE!!!!!!!!!!!!!!!!!!!!!!!!!!

OHhhhhh bitter sweet

So I can hold my baby girl now whenever I want but I m scared of hurting her so I have held her min. Untill she gets the chest tube out cause I m affraid it hurts when I move her. Soooo it sounds like tomorrow that will come out (fingers crossed). I feel bad cause today I ve held her for a little bit a couple times but when I m not holding her she just lays there with her eyes just wide open staring at nothing but as happy as can be. She needs a little crib toy to stare at hopefully grandma comes up tomorrow and will bring it for her. And if she gets that chest tube out tomorrow I will be able to hold her all day and night long YAY:) ohhh and I cant believe the smiles she is giving I got one tough cookie... I mean for only being 6 days after surgery only 2 days off ventilator she is smiling like crazy and is happy as can be. She is a strong baby... I LOVE THIS KID!!!!!!!!!!

She Smiled at me this morning

I have noticed that Bella is getting back to her old Happy self again. Just laying there staring with no care in the world. She smiled at me this morning. She is back on the binky and holding her blanket up to her face... Looks around and all she can do is smile when you talk to her. I missed that face :) Today we are going to try to give her a feeding by bottle instead of nose tube. I ll let you know how that goes later. They are leaving the chest tube in for another day or two cause she keeps getting fluid around the lungs that is draining.

Please say a prayer for a family that had there baby pass last night here. I know I can't thank you all enough for all the prayers you all have given for Bella.

Hiccups

Bella had the hiccups tonight it is so sad to see her in that pain:( Everytime she look at me like mommy help me, do something. And I cant do anything for her. Usually I give her a little water and it helps but she is not taking bottles yet only through a tube in her nose. I feel awful, I just wish I could take her place. I was looking at her and I just wanted to tell her mommy will never let you go through this again. And I couldnt cause I know she has to do it at least two more times... Ohhh I hope she dont hate me by the end of all this...... I feel use less if you are a mother just think of it if your baby is going through all that pain and you couldnt help, IT SUCKSSSSSSS!!!!!!!!!!! ;( ;( I love you Annabella !!!!!!!!!!!!!!!!!!

I got to hold her and out of ICU!!!

Well let's see, since the last time I posted a lot has happened. She is off all her drips except her lipids. She is still getting fed from a tube in her nose, but that should change later today or tomorrow. The chest tube in her side is coming out possibly tomorrow morning. Right now she is crying because daddy woke her up with his whiskers!! Her heartbeat is 160, respiratory rate is 52, blood pressure is 82/37, and her blood oxygen is 86. I'm rubbing her forehead and talking to her trying to settle her down and get her back to sleep. I finally got to hold her today. It was bitter-sweet because I couldn't help but think that her remaining chest tube was hurting her from me holding her. I can't wait until I can hold her with nothing connected. "Twinkle, twinkle little star" is definitely her favorite song. I'm singing it to her right now and she is settling down. I love my little girl sooo much! Parker and I are truly blessed to have her and to be able to love on her. I love my little princess!