conversation with the good lord above

Annabella s surgery is only one week and 3 days away. :( I know that god will be there with her in that surgery room as well as leading those hands of her Dr hirsch. I know that she is going to be ok. But it is still heart breaking to see your little girl go through it all. every poke and every cry , every surgery and every Pain . I keep trying to be strong. but when I sit there and stare at such a beautiful little girl and think of all the pain the MY LITTLE PRINCESS is going through I start to ask WHY , WHY HER , WHY ME , WHY PARKER, WHY HER, WHY MY BABY GIRL!!!!!!!!!!!! I do know that there is a reason and I do know that I will never know WHY . But In God I trust that he will make his child well. As I was driving down the road the other night with this little angel in the back seat I just couldnt stop crying So I started to talk to the great lord above and through all of what was said is no matter what happens this is my baby girl but this is Gods child she will be ok , she will be heeled.. God please know I may ask why alot but I do not doubt you , Thank you and I know I am blessed to have My baby girl !

Heart cath tomorrow and 2nd Surgery date......

Yesterday we went to the cardiologist appt.. went very well. sucked that she got poked twice to draw blood . :( and they did xrays and if you havent seen this done it sucks they do it diff at diff places like this one she is put in a plastice tube with arms straight up and legs dangling. she screamed!!!! Well she has a heart cath tomorrow and then Dec. 2nd is her 2nd open heart surgery.... soooo PLEASE keep the prayers going.... Thank you!!!!!!!!!!

coming up

Annabella is going to be 5 months on halloween and is going to be having a heart cath on nov 12th. Then prob a few weeks later have her next open heart surgery .... :( I m trying to stay strong . :/ but it still is not right that this is happening. I love you baby annabella

4 weeks after surgery seen cardiologist today!

Annabella is doing so well she is not in anymore pain.. Well unless she sneezes or got the hiccups. :( But other then that she is pain free.. Back to the HAPPY baby girl that she is. Today she went to the cardiologist appt and he said everything looked good that he will see us in a month unless something is wrong that we think we need seen sooner. He said that on oct 6th when that appt is we will set a date for late oct first of nov. for her second surgery. Until then our job is to keep her HEALTHY!!!! So please if you are going to come aroung her wash your hands, dont smoke before or while around her. If you are sick please wait until a few days after you are better to come by her. :) And our other job before her next surgery is to get her to GAIN WEIGHT!!!! which we have had a little problems doing lately, but she is getting there. Well keep those prayers going... THANK YOU!

Follow up with the cardiologist 2 weeks after surgery

Today we went to the cardiologist and all went well. She got her last stitch out. He is adding alittle formula to the breast milk cause she is losing weight ... She is 23 and a quarter inch long and 9 lbs 11 oz. Other then the weight she is doing good... WHAT A TROOPER!!!!!

Home doing well. In some pain

Bella is home and doing good. she is starting to really eat better so i dont think we ll need the nose tube anymore . :) she been sweating alot and seems to be fussy cause of pain but still smileing all the time.. SO DARN CUTE!!!! I love her so much.....

scare this morning.... BYE BYE ANN ARBOR / HELLO WAUSEON she nursed and got tubes and ivs out today

So it looks like we are going to be coming home tomorrow :) She is off all her ivs, tubes ,etc. She has a feeding tube in the nose that she will be coming home with for a few days.. I wish we could bring this monitor home with us hehe, It tells her oxygen and heart rate at all times. She nursed today once and did really good so hopefully she keeps it up and we can get that nose tube out. This morning some may have seen the facebook asking for prayers cause they thought she'd have to go back in to surgery. They did a echo this morning and saw that she is getting to much flow to her lungs. So they were going to open her back up and close some of that off. But after our surgerion talked to our cardiologist they decided that she would be ok till her next surgery and they figured that would happen in Oct. So just because we are coming home tomorrow. Now this dont mean you can stop praying :) cause the next one will be here before we know it. The shunt should last till she is 6-8 months old so that means jan or feb but they have to do it before the winter months cause they dont want to take chances of her getting sick. Well Wauseon we will hopefully see you all tomorrow! :) :) :) Oh yea did I tell you All I HELD HER ALL DAY AND NIGHT HEHEHEHEHE!!!!!!!!!!!!!!!!!!!!!!!!!!